Thursday, May 29, 2008
Tuesday, May 27, 2008
Ok, I told you I wanted to share with you about a young lady we meet at the hospital. Doug first spotted her while we were waiting for Sarah to go to surgery. She came into the room we were in and began cleaning the area across from us. Doug got my attention and said "She has down syndrome. Look at her. She must work here, everyone is calling her by name." I got a glimpse of her and then they arrived to get Sarah so I lost her. As we were in post-op waiting on Sarah's room, I spotted her and commented to Doug, "there is that girl we saw earlier. She does have down syndrome. Wow, she works here." The nurse over heard us talking about us and told us that she does have down syndrome. She is a hard worker and takes her job very seriously. She asked if the lady could talk to us, she stated that she loves to talk to families of children with down syndrome. "J" came right over and introduced herself and began talking. She was very articulate. I understood about 90% of what she said. She had wonderful manners. She was 24 years old, the oldest of 5. She graduated high school and has a boyfriend. She use to date another boy with down syndrome that just got married to a young lady with down syndrome this summer. They are all friends and she plans on getting married too. She works until 2:30 and then her mother picks her up. Her brother is graduating school this year and they are going to have a big party. After talking to us for about 15-20 minutes she then adds "I have down syndrome like your baby." She lives a normal life and is "normal", so normal that she tells us she has down syndrome as an after thought. This is what I want for Sarah. To live her life as anyone else and the down syndrome to be an after thought. I want her to have a rich fulfilling life. I want her to experience life to the fullest. To reach her potential and to be happy. "J" stated as she was leaving to Sarah, "Sarah you are my new best baby friend." I was crying by this point. I so wanted to hug her and thank her for being herself. I did not, I did not want her to think I was belittling her. What a blessing this young lady is. She is using her down syndrome to bless those of us who have small children with down syndrome. What a testimony. I thank God for him bring her into our lives and showing me that Sarah was created for a special calling in life and he was going to bless her and others are and will be bless by knowing Sarah. Praise God for his faithfulness. I have begun working on our profile book for our adoption of a little blessing. This is Sarah's page so far. What do you think?
Monday, May 26, 2008
Saturday, May 24, 2008
Today we went strawberry picking. Both kids had so much fun. I think Sarah is finally on the up hill swing of her surgery. Wed-Fri were rough. The doctor said it was probably the scabs coming off. She refused to eat or drink and giving her meds was almost useless since more ended up on me than in her. Today she has not need any pain med and is so much more like herself. She is eating and drinking well. In fact she has two new accomplishment today!!! She fed herself breakfast which consisted of pirate booty(puffed rice) and a cup of milk. We have been working on this for months. She could feed herself larger items that she could bite off, but not small actual finger foods that were just one bite. Here she is eating, yes she is in the floor, she decided to pitch a fit at the table so I just sat her in the floor. She poured the food in the floor prior to eating it. Oh well, that's life! The second thing she did was to pull to stand from a lying position in her bed. She has pulled to stand several times with a little help, but today she did it all by herself and in the bed even. I was cheering her on. I wanted to grab the video camera, but I was afraid I would miss it. I grabbed the camera and got a picture afterwards:
Wednesday, May 21, 2008
We fixed up the outdoor area for the kids to play in. Elijah is loving it. He loves to play in the sand box and "accidentally" fell into the pool today! Hmm, wonder how that happened. He really is loving the great outdoor fun. Sarah is upset that she can not go swimming or play in the sand. Both are big no-nos after tube placement. Once she feels better she can enjoy the fun with plugs in her ears. She is really having a rough day. The pain meds do not seem to be holding her pain tonight. If it gets worse, I guess we will head to the ER. Hopefully I can keep her comfortable to morning and give the doctor a call then. She has not eaten much today, she did drink a bit earlier. It is so hard to hear her cry in pain. It just breaks my heart because I can not make it better. She gets so mad at me because I am the one giving her the pain med that taste so horrible that she will not let me soothe her, which also hurts. I know she does not mean it meanly, she just doesn't understand and right now I am the bad guy giving her the yucky meds. Please be praying that she feels better soon and we do not end up back at the hospital.
Sunday, May 18, 2008
After a good night sleep, I have the energy to tell you about our stay. It is so funny, I use to not be able to sleep because of Sarah's gasping at night, she no longer does this and now it is too quiet to sleep. Oh well, I guess I will get use to the quietness! We arrived a little before our set time of arrival. Signed in and then realized baby doll was MIA. Of course while Doug was looking for baby they called us to check in. So I did the check in and when he returned with baby they checked in. Sarah, Doug and I all got matching hospital bracelets. We spent the next 20 min trying to keep Sarah from ripping hers off. I really wanted to rip mine off too. Those things stick to your skin and hurt. We then are called back for pre-op. They check our bracelets, weigh Sarah(man, glad they didn't weigh us!), took her vital signs, etc. We changed Sarah into the hospital pj's. They were soooo cute. We then spent 2 1/2 hours trying to entertain a hungry baby in a confined space with other screaming kids around us. Sarah finally went to sleep and of course they picked that moment to come and get her. She went right to them and was just fine. I was crying. After surgery she was hysterical when we got to her. It took an hour and four doses of pain meds to calm her down. No fun. In recovery we meet a beautiful young lady that is our vision of Sarah in 22 years. She was 24 years old, articulate, well mannered, job holding, boyfriend committed lady who happens to have Down syndrome. I want to share our conversation with her with you in a later blog. It truly blessed me. We then went to our room, which happened to be in ICU because no other rooms were available. Talk about living in a bubble. This was not good. They really should not put non-ICU patients in ICU. Oh well. We then spent Thursday, Friday and Saturday morning trying to get Sarah to drink. She would eat, but did not want to drink. Weird I know, but that's our Sarah. I finally begged, pleaded and convinced them to let us come home Saturday morning. I could not take the bubble anymore. Sarah has been fine at home. She is eating and drinking well. Here are a few pictures of her in the hospital...yes she is in a drugged state of happiness. The last picture is her spitting her pain meds at us. Oh the joys. Hope that stuff does not stain it is on all of my clothes.
Saturday, May 17, 2008
Wednesday, May 14, 2008
Sarah had her T&A and ear tube surgery tomorrow. Please keep her in your prayers for a safe surgery and speedy recovery. I will post after her surgery when I am able. We will definitely stay over night and they told us it could be 2-7 days. We are prayerful that it will be on the short end of that. Sarah has been out of sorts today. I think her teeth are really hurting her. Elijah is also fussy. I think he senses something is going on, but does not understand. Pray for his peace. He is really enjoying Nana being here. Pray for our peace as well. It is hard to see your children hurt. We want the best for them and we know the surgery is for her best, but I also do not want her to be in pain. I will update when I can. Thanks.
Tuesday, May 13, 2008
Why is it when Snow White would work and whistle she would have a ton of help cleaning, and when I whistle I wake the children and then have more to clean? Now mind you, I do not want certain creatures coming to help, but I certainly could use some help. Mom is coming today so she can stay with Elijah while Sarah has surgery, so I have been house cleaning. I have cleaned out the cabinets(most of them), cleaned the stove, all of the deep stuff that I only do, well, when mom comes! Do you do that? Do extra cleaning when your mom or mother in law comes to visit? My mom and mother in law both live out of state, so when they come it is for a long visit. I can't hide the dirty laundry in the bath tub(great hiding place!). I love to have mom visit, but I hate the cleaning. Although her eye site is not as good as it use to be.......maybe I can skip some of the cleaning and she would not notice. Well, got to get back to the cleaning!
Saturday, May 10, 2008
Friday, May 9, 2008
Elijah got a camera for his last birthday. He loves to take pictures. He does not always stop to take the pictures, we get some fast action photos! Glad it is a digital camera so I don't waste money on developing. His camera does not take the best quality pictures, but it is good for him. Here is a few of the 100 pictures I downloaded tonight (it really was 100. I had not downloaded since Christmas!). Some of these of course Doug or I took, but most are Elijah's work.
Thursday, May 8, 2008
We finally got our summer garden patch planted yesterday. Every time we have tried something has happened. Elijah was so excited. He is really into planting this year. He has always loved to play in the dirt--what child doesn't. Sarah was not impressed. She was in her walker to keep her from eating the dirt and she did not think that was fair! We planted tomatoes, strawberries(in a container), peppers, watermelon, cucumbers, lettuce, and carrots. We also got pumpkins, but will wait a little bit to plant them so they ripen closer to fall. Last year our pumpkins were ready in Aug. Today it is lightly raining, so perfect timing! The first thing Elijah did this morning was to jump up out of bed and run to the back porch to see if the plants were growing. He said they were. He was so cute.
Tuesday, May 6, 2008
Monday, May 5, 2008
Elijah has been wanting us to clean out the pool for him so he could swim. Well, we finally did it. The water was freezing, but both kids enjoyed playing in it. Elijah stayed in the pool for hours, in and out, and back in, etc. I only let Sarah stay in for about 20 min. Her little lips were quivering. She pitched a royal fit when I took her out. Kicking, screaming, signing more, screaming more. She was soooooooo mad. I made it up to her by cleaning up her swing and letting her swing until she nearly fell asleep. I am so glad summer is here. The kids love being outdoors. Doug is working on them a play area. We will have the pool, a sand box, and some play things outside. It is going to be so fun.